Today Jacob had to get a blood transfusion as the chemotherapy he has been having the last two weeks has kicked in, all his blood levels are low and he will probably also have a platelet transfusion on Monday. His ANC (white blood cells/ immune system) is as low as 78. Normal is between 3000-7000. Under 500 he cannot be in crows and less than 200 is considered as 0. If he gets a fever or starts coughing now he will get hospitalized. His magnesium levels were better today and his blood pressure is also more stable now when he is on the medicine.
It is strange, how sedated procedures, chemotherapy as, transfusions and pokes can become a daily part of your life. Days at the hospitals are exhausting, I’m happy I had my friend Karin here to keep me company and play with Jacob and Simon. Hanging out in the hospital with a good friend and coffee is not that bad after all. And I don’t know what we would have done without Jacobs iPad, he loves it and makes the long days pass quickly, he already finished all angry bird levels, and he is now into all the math apps- a great way to practice his math skills
Jacob has not been that nauseous that I expected, and he is still eating well. Taste and smell is changing so it is difficult to know what he wants to eat. Favorite food changes every day but I’m happy he likes to try new things and he thinks it is a bit funny that today he had a cherry lollipop and he loved it because usually he hates the taste of cherry. Jacob has been feeling surprisingly well during this chemotherapy face. Seeing him jumping around, playing kinect and sword fighting with Simon is so relieving.
I have to say I have a very wise 6 year old. Every evening since his diagnose before we go to bed I ask Jacob about the best part of his day. That way I hope to help him process the day and we also have some nice conversations. Yesterday when I asked him he said it was to go to the hospital. I wondered what in the visit and he said that it was to get the two pokes in his legs?! I was very confused so he explained “mom it is good that I get those pokes because the medicine will make me healthy”
It is heart breaking to think that the best part of a childs day is to get chemotherapy but at the same time it is so amazing to see how he adjusts and accepts this new situation. He is getting better and stronger. He is the bravest.
Please pray for
Jacobs blood counts to recover quickly
Continuing to eat well
Magnesium level and blood pressure