Today was a big day, Jacob went to school. He was excited, I was nervous. It felt nice to drop him off, to feel a little bit normal but also a bit scary.
Its such a balance of normality and not risking too much. Infections, colds…being different or children staring…
but he had a great day, I love when he gets that sparkle in his eyes, he might not say it but I know he loved it. Tonight at bedtime he told me about his day and I realized how much he missed this normal life. He will be able to go two more days this week and most likely a few next week. We are hoping he will be able to start treatment again this Friday and that means his counts will start dropping during next week. After that it will take about a month until he can be back at school. Likely he will be able to be in school most of November December.
January – march will be intense, and most likely no school, he will get the same type of treatment that he just had and gave him the sores and after that he will also get radiation. Scary to think about, so we just take one day at the time, enjoy and celebrate everything good and the small steps towards recovery.
The last week has been a recharging week. After those hard painful days we could finally breath. Jacob has been feeling well and life goes on. Having David home from work and his mom visiting has been a blessing during this hard time. Sometimes things work out for the best even in the worse of times.
Life is different from what I expected and it is not how I planned it. But I still believe the best is yet to come…
More photos and video clips from Sept 19-27: http://www.flickr.com/photos/36414830@N02/sets/72157627646510997/