Yesterday was a better day.
After days in anxiety, panic and sadness we got some better news.

It was a long day starting with radiation, his port needle was not working so they needed to re access Jacob without numbing creme. He did not say a word, did not complain or cry. They put a needle in his chest and I was the one holding my breath.
He should have a medal, a big one for all the things he is going through…
After that Jacob had a new ct scan done of his lungs. At the clinic appointment the port was not working again, so Jacob chose a finger poke, as the option was re accessing his chest again. 
The ct scan showed whatever is in his lung has improved, after all they still think it is a fungal infection that is the cause and we are now back on anifungal medication.
Hopefully now with some immunsystem and in a phase of treatment that is not as heavy as before and with the right medication he will be able to fight this fungus.

We have now entered the part of chemotherapy that is called maintenance, for Jacob it starts with ten days of radiation, (he already had 3) and then chemotherapy at home and once a month chemotherapy in clinic.
Here in the beginning doctors are figuring out the right dosage of chemo for him and also because of this infection we will be going in checking labs more often. But we hope and wish that the time with fewer clinic visits will soon be here.

Sofia