tired little JacobPosted by in From David & Sofia
Jacob has not been feeling well the last days. He is very tired, has joint and jaw pain and is very moody. It can be a side effect from his chemotherapy but can also be low hematocrit. We are going in to clinic tomorrow to see what his numbers are
For me to has been very emotional, I have felt very sad seing him like this, probably because it reminds me of the weeks before he got his diagnose.
To clear my thoughts I started running and i got inspired by Jacobs teacher Rosemary, so I joined the TNT team.
this week I shared a story with my team, a story Jacob and Simon have been part of creating
Once there was a little boy that loved to play, run and joke. But one day he started to feel very tired, his legs and belly were hurting and he did not want to play. He just layed on the couch and even on his 6th birthday he did not want to celebrate
His mom and dad were worried and sad, so was his little brother. So a day in February his parents took him to Seattle children’s hospital.
The doctors looked worried and were talking outside the room with mom and dad. Mom came in to the little boy and told him that he was very very sick, and they had to live in the hospital for a while.
The little boy nodded, he already knew, because already then he was a boy with very special powers.
Those powers made people love each other more, care and show compassion. He made people aware of life and death and despite all the pain he went trough he kept smiling.
What had happened to him was that a evil king called the evil king leukemia had sneaked in to the little boys blood, where he created an army of evil warriors that was killing all the good white warriors and also the red and orange friends called, cells.
The doctors had to give him a very strong special medicine, called chemo, to kill all the evil. The little boy started to feel better, but because evil king leukemia is very sneaky and can sometimes hide, the boy had to take the special medicine for years. And even if that medicine often made the boy feel bad, made his hair fall off and made him tired it was very important for him to get, and he knew that and he kept fighting and smiling.
This is why there are people who are working hard, running, sweating, biking, swimming, hiking crying and writing to find new, better medicines and to one day find a cure so that no boy or girl ever needs to be to sick and tired to play
And to one day destroy the empire of the evil king leukemia forever.
You can read more about what I’m doing on