Header image

Hi there,
I got a call from Jacobs hospital late this evening.
Last Friday he had his back poke and chemo but I also asked them to draw blood cultures, just in case there would still be any bacteria left.
They now confirmed the bacteria is still growing around his port. After 2 weeks of strong antibiotics and several flushes with hydrochloric-acids the bacteria is there, this only leaves us to one option. To remove Jacobs port.
Unless he has a fever before Monday or Tuesday this will be scheduled for next week. I did nog get much information from the nurse who called but it sounded like they will take it out and wait a few days before putting a new in. She also said the doctors were very surprised to see this…

This will be Jacobs 3rd port.

Disappointing news, but at least we are on top of things.

Jacob has been doing great since coming home from the hospital.
He has been happy to be back in school and yesterday one of his classmates called to ask if he could come over to play, I felt so happy seeing him play and just be normal.

Being thrown between these good and bad moments and feelings make me tired.
But there is nothing else to do than look this evil in the eye and keep going,
like a bulldozer,
Keep standing,
rising when falling
Keep catching the good moments,
everyone of them

Please pray for strength
For healing
And for everything to work out smoothly

Love
Sofia

I’m very happy my parents and brothers decided to come visit us,
love having the house full of people.
We also had some good friend over from Stockholm on Saturday and a wonderful Easter lunch on Sunday with our Malmö friends.
So happy to celebrate Easter with some of our really good friends and family.

Going back and fort between hospital and home is strange, for everyone of us I think. Strange to every day wave good buy as we have to split up and stay apart.

It has been a bit difficult for both Jacob and Simon when they realize the time is up and Jacob has to leave. Simon has started crying saying he wants Jacob to stay. Jacob gets upset and says he will never come back home.
But I still think it is good to come home, even for a little bit,
because even if you try to live a normal life in the hospital by doing laundry, decorating the room, and emptying a dishwasher it never gets normal.
Now I’m home and David is staying with Jacob. I’m taking Lucas to his first day of daycare tomorrow:)

Jacobs platelet count and hematocrit is slowly getting better, very slow, his ANC has not changed.
David talked to one of Jacobs doctors the other day and they do not want to decrease the iv antibiotic for his blood infection as they worry about not getting rid of it.
In case Jacob gets a fever and positive blood cultures in the next weeks we might need to get the port out.

Please pray for
Jacobs ANC to increase
for his body to heal
For the blood infection to completely be gone

Love
Sofia