Doctors continue to monitor his kidney function, and they say his vital numbers are the same or better in every area, so nothing is worse today. Yesterday they did an ultrasound on his abdomen and the cancer mass there is still present, but they haven’t measured to see if or how much it might have shrunk.
Everyone is still learning the medical terminology for Jacob’s diagnosis and treatment, but since we had it down wrong before, we wanted to give you the exact correct name of the type of Leukemia he has. It is called Pre-B Cell ALL, CNS plus.
What Happened Today:
This morning Sofia was sad, but she had a really good night’s sleep last night, so it was good that she got rest. Jacob has been having trouble taking the four oral medications he has to take, so today that struggle took much of Sofia’s energy. David had been away from the hospital this morning, and she finally called him to come help encourage Jacob to take his medicine. Jacob can’t swallow pills, and the liquid versions of his medications have a really terrible taste, so they have been crushing pills and giving them to him in ice cream or other things, but even those have a really bad aftertaste, and Jacob is insistent on not taking them. Nurses said this is normal behavior for a child and Jacob is likely doing this because it is the only medical thing he has any control over, in addition to not liking the taste. In order to make it easier and a better experience for him, tomorrow they will be putting in a tube through his nose to his stomach so he can get his medications at the proper times with less trauma. David didn’t sleep well last night, so hopefully he can get better rest tonight.
- Jacob’s friend Hjalte and his family visited today and they laughed and played and Jacob was super happy to see them. They had a couple of hours of fun, and seeing Jacob happy made the rest of the challenges today seem worth it.
- Molly, Simon’s preschool teacher, brought dinner for the family. Thanks Molly!
- David’s friend Alexander has been here and Jacob has a great time with him and loves playing with his iPad.
- Friend Mari brought Sofia her favorite Swedish dessert…it’s like a sweet bread with whipped cream, and this was a very special gesture for Sofia that she loved very much.
- For smoother delivery of medications
- For consistent improvement in kidney function and other vital info
- For David, especially, to get adequate rest